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<p><strong>National Emphysema/COPD Association<br />
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The National Emphysema/COPD Association (“NECA”), a patient advocacy organization, wished to obtain funding for a comprehensive study of the unmet needs of COPD patients, their caregivers and the physicians who treat COPD patients. Beresford Research wrote a detailed proposal on NECA’s behalf that won funding from Novartis in a competitive bid process.<br />
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Working with Innovative Health Solutions (Brookline, MA), Beresford Research conducted focus groups among patients, caregivers and physicians (both pulmonologists and primary care physicians) in two US locations. The knowledge gained from these focus groups was included in the survey instruments that were developed by Beresford Research and were distributed both in print and over the Web to all three groups. </p>
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<p><span class="sub_italic"></span> Additional patient and caregiver printed surveys were distributed by regional Better Breather Clubs throughout the US (contacted by mail), by a home oxygen delivery company, and at local COPD patient meetings.<br />
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The focus group findings were presented at ISPOR 13th Annual International Meeting, garnering positive awareness and promotions for NECA and the major pharmaceutical company sponsor. Over a thousand COPD patients, 500 caregivers and nearly 400 physicians responded to the surveys, providing a rich database for NECA and Novartis to exploit.</p>
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<p>The overall study findings have not yet been released publicly. To view a pdf document of the focus group findings, <a href="pdfdocuments/ispor_poster.pdf" target="_blank">click here</a>.<br />
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<span class="textQuote"> "Beresford Research serves as NECA's research arm. The Beresford Research team consistently delivers, on time, with top-quality attention and care."</span>
<span class="text">Barbara Rogers,
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NECA, National Emphysema and COPD Association<br />
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